I am a parent of a preterm infant born in 2006 and is one of the founding members and the Director of Advocacy and Policy Making at the Irish Neonatal Health Alliance. Since the birth of my daughter, Amelia Faith, I has been advocating for improved, family-centered and standardised neonatal services on both the national and international platforms and was instrumental in the formation of the collaborative platform in Ireland which produced Ireland's inaugural benchmarking report on prematurity and the implementation of a 24 hour Neonatal Transport Service. I work alongside healthcare professionals, educators, industry partners, government officials and researchers and is patient collaborator on several research studies including the HRB Perinatal Clinical Trials Network, Core Outcome Set For Evaluation Of Interventions To Prevent Preterm Birth and the European Standards of Care for Newborn Health project. I oversee and review neonatal curriculum reviews, deliver lectures to students entering the field of neonatology and nursing and am active in several system reviews ie National Transport Medicine Programme, the Primary Eye-Care Services Review Group and the HSE National Advocacy Unit Patient Reference Group. I sit on the board of the European Foundation For The Care of Newborn Infants (EFCNI), am a board member of the NIDCAP (Newborn Individualised Developmental Care and Assessment Program) Federation International in addition to being the co-chair of the NFI's Parent Advisory Council and sit on the steering group of the Neonatal Brain Consortium of Ireland.